Parent says lack of support is 'unsustainable' for child with life-limiting illness

Emily Marsden is a full-time carer for her eight-year-old daughter Daisy who was born with Rett Syndrome, a rare genetic condition, that requires round-the-clock specialist nursing care.

Tuesday 25 April 2023 22:10, UK

The mother of a child with a life-limiting condition, who has been denied palliative care, said her situation is 'unsustainable'.
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