'Unsustainable' situation of mother whose daughter is denied specialist palliative care at home on weekday evenings and weekends

Looking after Daisy at home means that Emily only receives specialist palliative support for her daughter Monday to Friday, between 9am to 5pm.

Wednesday 26 April 2023 07:10, UK

Emily Marsden is a full-time carer for her eight-year-old daughter Daisy who was born with Rett Syndrome, a rare genetic condition, that requires round-the-clock specialist nursing care.
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